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My little mountain climber


This little girl has been climbing a mountain since she was born.  She was born very prematurely at 23.5 weeks gestation and it's been a battle to keep her with us.  Her pediatrician told me recently that she has the longest medical record at his office.  I actually have some trouble believing that because there are a lot of children out there with a lot of medical problems.  But it's pretty clear that her health is complicated. 

Recently she's had some kind of respiratory virus that put her back on supplemental oxygen for the last few weeks.  She seems completely recovered but she's still needing the extra oxygen.  It's been so frustrating to me.  Finally tonight I tested her blood oxygen saturation and it was good enough to take off her oxygen until bedtime.  We'll test her again in the morning but I'm feeling hopeful that just maybe we can go somewhere without taking that heavy tank of oxygen with us.

I love this picture of her.  It was taken on a camping trip last summer.  It was a great summer with no illnesses!  She loves to camp and was so cheerful sitting in her special chair with that baseball cap on backwards looking so cute.  She was closing her eyes because she was feeling a little shy.  We love her!

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